and community rallies round for brave Cystic Fibrosis sufferer
local community is rallying around a Highbridge Cystic Fibrosis
sufferer to support her and raise thousands of pounds for a charity
that helps similar sufferers across the UK.
McKenna, 6, from Church Street in Highbridge, has the life-limiting
Zoe McKenna told Burnham-On-Sea.com: "Amelia needs physiotherapy
twice a day to maintain her health and keep her moving, but she
takes it all in her stride and is so brave."
has regular treatments and scores of tablets every day to take alongside
regular hospital visits. We always try to live for 'today' and hope
says that Amelia tries to live life as normal as possible. "She
goes to school in Wedmore and is doing really well there. She's
so determined to succeed and is reading above her level - she's
an amazing little girl."
has received a lot of support locally in Burnham and Highbridge
from many groups and individuals, as we try to raise funds to enable
a cure to be found by the Cystic Fibrosis trust."
Monarchs gymnastics club have been wonderful, holding a fundraising
'wear yellow week' recently, while Burnham Swimming Club members
have raised money from a raffle and fundraising, and a bingo session
at Highbridge Social Club was also well supported."
Paul adds: "Her treatment is keeping her well in the short-term
but we'd really like to see a permanent cure found for her and the
thousands of other children and adults who suffer from the condition."
why last month I ran the London Marathon to raise funds for the
finished in four hours and 23 minutes and, while it was very hard
work, it was a great feeling to do it for Amelia and all who suffer
from Cystic Fibrosis."
thank everyone who is supporting Amelia and us with the fundraising
- it really is greatly appreciated."
was diagnosed with the condition at just 19 days and has been receiving
treatment ever since.
Amelia with her family in Highbridge and, above, dad Paul after
he completed the London Marathon for the charity. Below and top:
the Monarchs Gym Club fundraising for the charity